Jody emailed me asking for more info about my current protocol.
Here’s a general overview, with a few random details – I could practically write a book about all of this. I admit it’s not my most brief writing.
I hope it helps someone out there anyway.
I am totally bedridden and no doctors have been able to help me. I have read your postings extensively and I’m hopeful that you might email me the more recent Protocol that you followed to help you feel much better.
I really appreciate any response from you,
Thank you for your post on my blog (copied below). I’m so sorry to hear you’re totally bedridden.
This is a long email. I hope you have help or energy to get through it. heh.
I hope it helps.
There’s so much I could share with you. My protocol is NOT simple, and has NOT been easy. It has taken a lot. And I still have a way to go. Some weeks I was in total despair and discouragement.
This has taken me a ton of patience, tenacity, and tracking all my steps, and a ton of trial-and-error.
I also had to learn to add each step in tiny baby steps, and keep doing previous steps while adding new ones.
Here’s a SAMPLE list of all the things in my protocol (this is cyclical, I do a bit more of each, each cycle):
- Blood tests (many different ones) to get baseline information
- DNA test confirmed I had MTHFR mutations effecting metabolism
- Begin to Heal vitamin, mineral and micro-nutrient Deficiencies
- Learn how to properly maintain balanced electrolytes
- Clear out detox pathways to prepare for detoxing
- Begin to slowly add in co-factors necessary for later steps
CLEARING GARBAGE OUT:
- Begin simple stretching / easy beginner yoga to help circulation clean gunk out
- Detox parasites – Cure systemic bacterial overgrowths / infections
- Heal the gut biome with proper types and amounts of probiotics (many are not proper)
- Replace household products, body producs and foods that have toxins, carcinogenic substances, endocrine disrupters, … (sls, aluminum, “fragrance”, anything 3+ on EWG’s site) – use cleaner / healthier alternatives
- Upgrade supplementation to help support deeper healing processes
- Cure leaky gut
- Detox heavy metals
- Eliminate ALL sources of stress – “friends”, work schedule, horror movies, anything that stressed me out.
- Eliminate “inflammatory” foods and learn how to reduce systemic inflammation
- Eliminate American wheat from diet (glyphosate) and stop eating any GMO products (especially corn, soy)
RESTORE GREATER BALANCE
- Sleep 8-10 hours a day starting at 10:30pm
- Drink only pH-balanced distilled water
- Eliminate problematic diet issues – for a long time I had to drop all alcohol, gluten, dairy, and tons of foods that were causing me issues
- Learn a properly balanced nutrient-dense meal-planning structure
- Learn how to deal with my genetic mutations effecting metabolism
- Slowly add in tiny efforts of 7-minute HIIT cycles, anything is good (ie: heal insulin resistence and restore insulin sensitivity to reduce hypoglycemia stresses)
- Get my systemic imbalances under control (as Dr. Lam says, the OAT axis – more in a bit).
- Slowly add in supplements specific to my body profile to support healthy function for my MTHFR mutations and adrenal fatigue and insulin resistance and estrogen dominance etc.
- Slowly re-grow mitochondria that were probably devastated, be sure other items stay in balance while adding new energy-producers to the body – they will consume more resources.
- Eat only organic, whole, live foods whenever possible, at least 6 fist-sized servings per day.
- As systems heal, you need less of some bits of previous steps, and more of others. Over time I could add allergen-foods back into my diet. I’m not so diet-restricted anymore. Over time I could take less of some supplements. I expect more resiliency to grow with time so I can wean myself off more of the (enormous numbers) of supplements I’ve had to take over the years.
In short —
I had to learn a ton. I had to learn a ton about my body and step-by-step how it responded to various supplements and combinations. I had to learn what each and every symptom meant, and what would give my body what it needed.
Most importantly, I had to learn that Every Day is Constant Adjustment – like riding a bike. No Static Plan Works. I had to learn how to carefully listen to my body and learn what to do to re-adjust the handle-bars every few steps along the way to maintain and grow my balance.
The good news is that now:
- I sleep through the night – OFTEN
- Especially on good days, I can often do physical things for myself again – I can sometimes cook, clean my own house again, shop for my own groceries again – all things I could not do literally for YEARS.
- I’m getting my fibroids reduced and my menorrhagia under control – I bleed 1/3 as much as I used to each month, almost a normal (2-4 days heavy) cycle where previously it was 7-15 heavy days with no days off in between. I expect this to continue to improve as I do another cycle of the “fibroid heal” combo I am using.
- I can do bits of 7-minute HIIT workouts that I could do NOTHING of before
- I’m now bedridden roughly only 5-7 days a month, and up to 60% of my previous functionality on good days — where I had been bedridden for months at a time and extremely weak even when I was ‘better’.
- I have better diet resiliency – I can eat some of the foods I used to love, as long as I don’t overdo it or do it too often.
- My RLS symptoms are MUCH more rare and lighter now, and I usually can eliminate them within minutes (drink water, balance my electrolytes, take tissue salts, eat a bit of salt, or I need to eat a snack)
- My fall hay fever is far, far more mild, and I never get the complications I had in college (bronchitis, asthma symptoms, borderline pneumonia)
- My mood, mental clarity and ability to engage projects has improved radically
I had to make a lot of changes to my life and diet and habits, and STILL I have a way to go to get back to the activity level I could do in my 20s and 30s.
I know – these are broad brush strokes without specific “how to”s. That would take a lot more time, but I can offer a few leads and starting details about things I’m doing by starting here:
Things improved for me when I was first introduced to Functional Medicine (osteopaths). Conventional (allopathic) medical doctors were an absolute horror to deal with, borderline criminal in things they said to me, refusing to give me tests I explicitly asked for to discover or rule-out pre-clinical imbalances, the amount of money they charged me for NO help at all, treatment full of negligence, misinformation, drug-pushing (including substances that should not have been suggested for my body which exacerbated my issues) and lack of education. Functional Medicine trained doctors are the only medical practitioners I now trust.
I then got more improvement using things I learned from Dr. Ben Lynch (mthfr.net plus youtube introductory videos with visuals) and Dr. Andrew Rosenberg (Boise, Red Mountain) materials online (website and introductory youtube videos).
I added things I learned from them, to the base protocol I was already using from Dr. Lam for Adrenal Exhaustion, and started to really see radical improvements.
“Bedridden” is a very hard place to start. Your body may need detox (get the garbage out and unclog) first and foremost (like mine did) before you add in any new things to help you heal (diet, supplements, etc).
But if you’re already super low in physical resources, detoxes can be especially draining and devastating. Most of this process, I lived alone, and some days I could barely make it from my bed to the bathroom. Showering meant several black-out episodes – if I could shower at all. I’d black out just trying to walk to the kitchen for food. I had no energy, so very often I couldn’t manage to cook or even feed myself properly.
Do you have support? I wish I had had someone who lived with me who could have helped me cook, and help me track my process and heal faster. Some days my brain fog was so bad I couldn’t even remember what supplements I’d taken a few hours earlier. I had to learn to build written structures to help me keep track of things.
I started out with blood-tests (LEF.org, summer sale) to find out a baseline of what was going on. So much of my body was off:
- I got a comprehensive nutrient panel – I had tons of deficiencies – iodine, zinc, B12, D, K, Iron, Calcium, magnesium, and others.
- I got a wide-spectrum food sensitivities and allergies test – turned out tons of my daily foods were allergens for me — rice, garlic, dairy, avocado, things I ate every day…
- I got a comprehensive stress-panel (cortisol, dhea, adrenal function), and comprehensive endocrine panels (estrogens, testosterone, much more) and found out that I had 3 systems in failure — my adrenal system, my thyroid system and my ovarian system (hormones) were totally out of whack.
- I got a DNA test for MTHFR and found out I have a genetic mutation that contributes to (so many issues I have had) – adrenal fatigue, insomnia, estrogen dominance that lead to fibroids, so much more. Turns out all these things were preventable if I had been educated by the right doctors 20 or 30 years ago.
- I also learned that some of my difficulties related to my previously diagnosed heart murmur – symptoms consistent with congestive heart issues (also MTHFR-related)
I learned that my food sensitivities were a result of gluten-induced and candida-induced leaky gut. I had to deal with that too, heal the gut lining and eliminate the culprits. I still continue using l-glutamine and l-lycine to keep my gut lining healthier.
But getting the baseline status information wasn’t enough. When I started taking supplements and products to heal my deficiencies or to detox candida, I had horrible issues.
You see, I had estrogen dominance, which had clogged my detox pathways, so any detox or upgrades I tried only made me worse at first.
So then I started using molybdenum, milk thistle, NAC, and quercetin daily and doing regular simple liver/kidney cleanses to clean out and support my detox pathways. I used a simple parsley tea for liver cleansing, and simple lemon-water for kidney cleansing. I have to keep doing them periodically, because I’m still detoxing and healing my system more and more deeply.
I couldn’t even eat fruit for a long time, because the sugars would spike the systemic candida overgrowth and knock me out again. I had to do an elimination diet and slowly re-add foods back in later as I got my candida, inflammation and food allergies under control. I’m still getting rid of parasites. But I can only do one layer at a time, like peeling an onion. Otherwise my body can’t handle the load and it shuts down again.
So keep in mind, even WITH cleaner detox pathways, my system was so weak at first that each new step I learned I had horrible results before I got better — detox creates Herxheimer reactions in the body, and each baby-step I added to healing my body, I often had to live through the detox reactions. This taught me that I had to supplement low-B vitamins (B1-B6), molybdenum, NAC, etc and NON-FOLIC-ACID multi-vitamins to help with detoxing and healing. I also had to slowly pulse in liposomal glutathione to help the body cell-division to create new tissue for my healing.
Also because my system was so very weak, each detox (especially candida detoxes) resulted in UTIs and yeast infections. So then I had to learn to be sure I used D-Mannose and FemDophilus every detox to protect my excretory channels from infections.
So anyway, going back to my overview list at the top of the email –
I’ve done a ton.
I don’t know what you need to do – you need to get the proper support that suits your unique body situation, body history and family medical history.
I do recommend starting out with a battery of baseline tests and I HIGHLY recommend finding a Functional Medicine Doctor who is Well Experienced in Adrenal Exhaustion, Lyme Disease, Metabolic Disorders and MTHFR.
Can you afford that? I couldn’t, so I had to educate myself more and more and more and learn a ton. I made many mistakes along the way. I also learned a lot.
If you want to ask me questions, feel free. If you want to talk about your list of symptoms and history, I’ll listen. Just know that I’m NOT a doctor and CANNOT tell you steps that will work for You.
But I Can tell you a ton about what I did, what worked for me, what didn’t, and what I learned.
I hope this helps, Jody.
Let me know if you want to talk more.